16 June 2008

By now I'm sure I'm the only one checking in on the blog. It's shameful that it's been this long since I last posted. Let's see -- what's been happening? Aaron had another re-evaluation at therapy last week. He has hit the dreaded "plateau" on the progress chart. He has made tremendous strides in the area of "gross movement", ie lifting his arm at the shoulder, improved strength, etc. The plateau comes in where the use and strength of his hand is concerned. He has made progress in that area, just not as much since the last re-evaluation. He still has decreased sensation/feeling/movement. Michael, Aaron's therapist is in the process of constructing a contraption of sorts to assist him in opening his hand. It's quite the sight, but if it works for him, then we will start bugging the insurance companies to foot the bill for the real thing. As soon as I remember the name of the company that makes it, I will add a link. It's pretty interesting!

Aaron saw his neurologist last Thursday. Tomorrow will be 7 weeks since the last seizure!! Dr. Chung said to come back in September and if he continues to be seizure-free, then we will begin looking at reducing one of his medications with the goal of being on 2 versus 3. He said that the short-term memory issues that Aaron is experiencing may be permanent. He also said that typically 6 months post-surgery a person will have recovered 90% of what they will recover. Six months will be in September. Aaron wasn't exactly jumping for joy over that news, but I reminded him that doctors tell you only their best guess -- he could just as easily recover 100% at the 6-month mark! God created that brain so we're trusting Him to have the final say!!

All in all, things are going very well. Aaron has waffled back and forth on whether or not he should start looking for work or continue to pursue school in August. The biggest question mark of course is whether the memory problem will be an issue in school. Obviously if you're forgetting what someone says to you, being in a classroom could be a bit challenging. He's still got some time to make that decision.

Well I guess that about does it. Aaron will finish out this week and possibly next week in therapy and then take a break. The idea is that if/when movement returns, then he would resume therapy. That's what we're counting on!

Thanks to everybody who continues to ask about Aaron! Blessings!

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